App replaces pen and paper to improve at-home recovery and lessen burden on caregivers for infants with heart defects
A powerful new app is directly connecting single ventricle heart defect patients to their doctors, dramatically improving their monitoring while they recover from heart surgery at home. Girish Shirali, MBBS, FACC, FASE, Co-Director of the Ward Family Heart Center at Children’s Mercy Kansas City, reported on how the technology is changing patient care at the American Heart Association Scientific Sessions 2014.
Winston Wahlgren, pictured here with his mom, Emily, in their home in Buhler, Kan., was born with a single ventricle heart defect. A new tablet-based app, called CHAMP (Cardiac High-Acuity Monitoring Program), is a more automated, accurate and simplified way for physicians to monitor high-risk, single ventricle heart defect patients such as Winston at home in real-time. The 3,000 children in the US with a single ventricle heart defect typically require three surgeries — one within several days of birth, one within six months of birth and one between 3-5 years of age. Nationally, ten to twenty percent of babies who have had the first surgery die before having the second surgery. The aim of the app is to enable quick intervention at signs of danger, reduce the mortality rate, and decrease the burden placed on at-home caregivers.
Credit: Children’s Mercy Kansas City
The app was developed with the support and collaboration of the Claire Giannini Fund and Heart to Heart Network, Inc., and the Claire Giannini Fund has provided funding for 200 units to be distributed nationally to potential partner sites.