Patients can improve healthcare: it’s time to take partnership seriously
The BMJ has called for doctors and patients to join together as partners to improve healthcare.
The journal says it is committed to “stepping up its commitment to patient partnership” and wants to “develop a strategy for patient partnership that will be reflected across the entire journal.”
In an editorial, BMJ editors along with Professor Victor Montori and Dave Paul at the Mayo Clinic in the US, argue that the preservation of institutional bureaucracies, as well as professional and commercial vested interests, “have consistently trumped the interests of patients.” They say clinicians and patients need to work in partnership “if we are to improve healthcare and challenge deeply ingrained practices and behaviours.”
Earlier this year, the BMJ launched a ‘Too Much Medicine’ campaign to help tackle the threat to health and the waste of money caused by unnecessary care. The journal will also partner at an international conference Preventing Overdiagnosis to be held in September in the USA.
Partnering with patients “must be seen as far more than the latest route to healthcare efficiency,” they write. “It’s about a fundamental shift in the power structure in healthcare and a renewed focus on the core mission of health systems.”
They add: “We need to accept that expertise in health and illness lies outside as much as inside medical circles and that working alongside patients, their families, local communities, civil society organisations, and experts in other sectors is essential to improving health.”
Several accompanying articles discuss “shared decision making” as part of a new social movement for healthcare reform.
Ray Moynihan, Senior Research Fellow at Bond University in Australia believes citizens can play “a more active role in some of the big and pressing debates about the future health of medicine.”
He points out that the boundaries defining “disease” are often arbitrary and the reliability of tools to “diagnose” these “diseases” is often poor, “resulting in all manner of false results and the potential for unnecessary labelling and ham.”
And he warns that the tendency to individualise and medicalise problems caused by a suite of social or environmental factors “is another issue ripe for more vigorous debate with a much wider range of players.”
He suggests that medical journals and professional associations “could play more of a role in providing space for informed thinkers outside medicine,” while citizens’ groups “could augment the population’s health literacy to help build a more coherent and confident public voice to take part in debates about too much medicine.”
This view is supported in an editorial by Leonore Tiefer at New York University School of Medicine and colleagues, who say that “contemporary enthusiasm for the commercialization and marketing of healthcare seems to offer ever wider opportunities to sell medical treatments.”
They point to a recent international conference (www.sellingsickness.com), where health professionals and consumer advocates developed a “Call to Action on Selling Sickness.” Among its list of concerns were the problems of biased science, hidden data, inflated diagnostic categories, unnecessary screening and treatment, and the widespread neglect of social factors when treating illness.
“The Selling Sickness call to action, promoted by an emerging advocate-professional partnership, will add strength to the new social movement for healthcare reform that may prove crucial to global health in the 21st century,” they conclude.
In a final article, Kelly Young, president of the Rheumatoid Patient Foundation, describes how her experiences as a patient with rheumatoid arthritis led to her work providing a more complete understanding of rheumatoid arthritis to health professionals and the public.
Describing herself as a “rheumatoid arthritis warrior” she says “comprehending the patient experience is essential to improving care, and this experience often differs from what textbooks lead clinicians to believe.”
Editorial: “Let the patient revolution begin”,
Tessa Richards et al.
BMJ 2013;346:f2614 doi: 10.1136/bmj.f2614
Observations: “The future of medicine lies in truly shared decision making”,
BMJ 2013;346:f2789 doi: 10.1136/bmj.f2789
Editorial: “A call to challenge the ‘Selling of Sickness’”,
Leonore Tiefer et al.
BMJ 2013;346:f2809 doi: 10.1136/bmj.f2809
Personal View: “Doctors’ understanding of rheumatoid disease does not align with patients’ experiences”,
BMJ 2013;346:f2901 doi: 10.1136/bmj.f2901