What are the most important things for health care teams to talk about in end-of-life discussions with patients in hospital and their families? A new study published in CMAJ (Canadian Medical Association Journal) asked older patients and their families for their top priorities and found gaps between what patients would like and the care they actually receive.
“Our findings could be used to identify important opportunities to improve end-of-life communication and decision-making in the hospital setting,” states Dr. John You, lead author of the study and associate professor of medicine, and clinical epidemiology and biostatistics at McMaster University, and a staff physician at Hamilton Health Sciences, Hamilton, Ontario.
Current guidelines list 11 key elements for health care providers to discuss regarding end-of-life care, although these are based mainly on expert opinion and not on patient and family feedback.
A team of researchers with backgrounds in general internal medicine, critical care medicine and palliative care surveyed 233 older adults in hospital with serious illnesses and 205 family members about the importance of the 11 guideline-recommended elements of end-of-life care. The patients had been admitted to 9 hospitals in British Columbia, Alberta, Ontario and Quebec.
Top 5 things to discuss in end-of-life care, according to patients and families:
- preferences of care in event of life-threatening illness
- patient values
- prognosis of illness
- fears or concerns
- additional questions regarding care.
“However, we found that these elements are infrequently discussed and that concordance between preferred and prescribed goals of care is low,” state the authors.
Patients reported that of the 11 key elements, an average of only 1.4 had been discussed with the health care team within the first few days after admission to hospital. The more elements of care that physicians discussed with patients, the higher the satisfaction patients and their families reported about care received.
“Our results suggest that concordance between preferences and prescribed goals of care, as well as satisfaction with end-of-life communication, increase with the number of elements discussed,” write the authors.
They hope that their findings will help improve end-of-life care for patients in hospital.
The authors have previously published a related guide in CMAJ called “Just Ask” to help physicians initiate end-of-life discussions with patients and their families.
What really matters in end-of-life discussions? Perspectives of patients in hospital with serious illness and their families, John J. You MD MSc, Peter Dodek MD MHSc, Francois Lamontagne MD MSc, James Downar MDCM MHSc, Tasnim Sinuff MD PhD, Xuran Jiang BM MSc, Andrew G. Day MSc, Daren K. Heyland MD MSc; for the ACCEPT Study Team and the Canadian Researchers at the End of Life Network (CARENET), CMAJ, DOI:10.1503/cmaj.140673, published 3 November 2014.